TRIALS: A Fight for Children with Niemann-Pick Type C, a Fatal Genetic Disease
Por um escritor misterioso
Descrição
Children with Niemann-Pick Type C (NPC), their parents and scientists seeking a treatment for this fatal genetic disease. WSJ follows this 6-year fight.
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Reno Twins With Rare Disease Involved in Huge Lawsuit - O'Mara Law
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NIH clinical trial begins for treatment of rare, fatal neurological disorder
Why Awareness Days Matter to Me as a Parent of a Kid With a Rare Disease
PDF) Recent Advances in the Diagnosis and Treatment of Niemann-Pick Disease Type C in Children: A Guide to Early Diagnosis for the General Pediatrician
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March 2022 – NNPDF
What is Niemann-Pick Type C Disease?
Why are people fighting over a promising treatment for a fatal childhood disease?, Science
New report gives national voice to patients, families affected by Niemann-Pick Type C, News, Notre Dame News
IJMS, Free Full-Text
Niemann Pick Disease - Rivin
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por adulto (o preço varia de acordo com o tamanho do grupo)
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